Ptosis and Me

Iyalode's Story

I got up this day in 2005 and decided to dress up a little and step out. I’d apparently not used the gadget called a mirror in a couple of years; because if i had, I’d have noticed i had an issue with my eyelid.

Hard as it is to believe, i was in shock to notice the droop on my lid. Hooping it was a temporary issue, I went about my day and the next coupld of days without allowing myself get too worried but obviously now i was self conscious.

Days turned into weeks and then months, and the eyelid never went back up. Instead, i started getting regular irritations in the eye to the extent that the eye became the surest tell tale sign to know if I was tired or feeling sick; it would just droop some more.

Curious, I started checking my undergraduate pictures, hoping to get a reassurance that it was a recent occurence. Unfortunately however, the first glimpse of my droop as revealed in pictures showed it dated as far back as 2003. How i managed to miss it for two good years, I wouldn’t know.

 

 I went in to the hospital (ENT) to lodge a complaint…a pair of glasses was prescribed.

My vision worsened.

I was prescribed another pair of glasses. My eyes started to feel heavy and then the droop became worse. I also had more frequent irritations and several expensive eye drops were prescribed, inclusing some tiny pills whose name or brand I cant remember anymore.

 

I knew the glasses weren’t helping…but i had to trust the professionals.

I bexame friends with a lovely Doctor sometime in 2006 (Grace?). Ome look at the eye, and she said oh, its Ptosis.

Ok, so we had a name for it! Great! How about a cure 🤣

She said there was no cure, i would juat have to manage it. I could massage the eyelid frequently however, to give the muscle some strenght. That mever happened!

Armed with a name, I could read up all about the situation, which i did. So, apparently our eyelids have some elastic muscles that allow them open or shut according to need…kind of like a spring or rubber (layman explanation, yea?).

Summary being that that muscle became slack, and thus couldn’t totally hold (or snap) the weight of the eyelid back all the way up in my wake up hours.

Back to the hospital to check what my options were, I was told that the only Doctor (that my consultant knew of) who could handle the case operated in Kano.

 

I went like 🤪, ta lo pa iya Tisha 🤣

Gbaun, I kept living my life. I could see pretty well, it was just uncomfortable and of course I was self conscious like I said earlier. It always felt like people were staring at my eye…they weren’t!

I remember taking pictures and then instantaneously hating them, because all I saw was the droopy eye (my imperfection).

In 2019, I found myself in the UK, with access to many fantastic access inclusive of Healthcare.

So I went in to see a GP (most of my own allergies centered around that rye, it felt like ‘village people’ were out to get it). She referred me to a specialist, who gave me a better understanding into the situation. We tried going down memory lane to find out what actually triggered it (she said it helps to know the history, it would help determine the approach). The only thing I could remember was the fact that I had a fall back in 2002, I actually heard a Crack sound in my back, and I still have pains from that site till this very day.

I was scheduled for a surgery.

I was excited, but I also had doubts. My spiritual side kicked in. What if something went wrong? What if I was making a choice out of God’s will? I started to confide in friends hoping to get their validation (who do we do this thing though?).

I got mixed reactions but majorly negative. Many asked me to just trust God to hea the eye (i was in a really religious set up at this point. I didn’t have friends out of Church or work).

In retrospect, the major reason why i sought validation was fear. The Surgeon had given me a disclaimer that the surgery could go either way of being overcorrected or undercorrected and that there was minimal chance of it being normal. In essence, i would pass through pain and still look like a freak. She howrver added that if the eye got so bad that i had nothing to lose, then it would be a win operation.

I was in a relationship at the time, with someone whose opinion i respected because he was super smart and well experienced. And he found a smart way to tell me i was merely looking for a cosmetic surgery 🤣. Oh that got me! I was raised to RUN AWAY FROM VANITY! Queer.

Bur for some reason, this left me upset and it formed the major reason why I decided to go for the surgery. Maybe some sort of deviance? Or trying to prove that i could be a woman of my own, with my own mind. I don’t know, but i fixed the appointment.

I got to the scheduled hospital with my heart really pounding, but mentally prepared for the surgery, only to be told the Surgeon called in sick, she had a hangover or whatever.

 

I was disappointed, id taken time off work.

Another appointment was scheduled, and that got cancelled also, while i was on the bus, almost at the hospital. The third time the cancellation happened, i asked to be taken off the list! It was definitely God telling me not to have the surgery done.

My friends in Church were ecstatic that i didnt pull through with the surgery; my parents were also happy. I wasn’t.

 

I learnt and tried a lot of tricks to cover the ‘disability’ but it was too obvious. I never got bold enough to upload any of my pictures on any social media. Behaved like a total ingrate! I would come to understand this, after years passed and i would look at those pictures and realize i actually even looked better back then than in recent times (perhaps this is why people do throwbacks? Lol).

 

The ptosis got worse, so it made absolutely no sense, me hiding.

And oh yes, i was getting picked on quite often. So I developed a thick skin, decided to love myself as i was; and then before anyone could say anything about my eye, i would make a joke about it myself! I thought i was ugly, but hey, that mever stopped the men from coming.

 

Unfortunately though, i was too wrapped up in my self consciousness that they were saying something totally different to me and i was hearing something else.

When i eventually met my husband, he did not even act like he saw it or identified anything was up; and after a couple months of dating, i threw it right out at him and he said “oh, i actually thought your right wye is the problematic onw”

 

🤣🤣🤣 omo, ẹ shock me. My mouth just gaped, trying to understand the pattern of thought…like what did he think happened to me? I fell against a tree and a branch stuck in my sockets causing severe trauma? Oh well 🤣

 

By now, the droop was worse; about 3/4 gone. And it gave me a queer look anytime i laughed. I have a hearty laugh whenever i laugh to my heart’s content, making me lose guard. It took a while for me to understand that my right eye was compensating for the left; meaning it was opening up beyond its capacity, in order to ensble me balance my vision and have something close to a proper sight. So whenever i laugh for example, my left lid shuts down completely while my right lid doubles up.

I hated more than half of my wedding lhotos. I was excited, which meant a lot of smiles abd laughs…which meant a lot of queer looking pictures. Id told my photographer to capture me only from the side (in which case you would have nothing to compare the problematic eye with), but he conveniently forgot. I didn’t use thise pictures.

 

What made it worse? Id said I wasnt going to use a makeup artist, it was aafe for me to make myself up because i understood the layout. Some of my husband’s friends however insisted, and that they would cover the cost. I explained my peculiarity to her and djring the test run, we agreed not to use false lashes.

On my wedding day however, she said she specially got a light weight lash and that there wouldn’t be a problem. Against my better judgement, i succumbed.

Before the event even started at all, my eye was 85% shut (oh. My husband came late 🤣. I waited for him for about an hour and a half). You can then imagine what i looked like when it was time for proper photographs. My lid felt super heavy and i had to use a finger to lift it for me to see at all with the eye. I eventually yanked them off but it was too late, my sight didnt improve for days.

 

My workload doubled up sometime in 2018 and my screentime increased, giving more burden to the lid but the irritations had piped down.

By this time, i had a regular 70% loss of visuals on a normal day (worse when i was ill or stressed). Whenever i saw people staring, id make a joke about it being a half moon eye. And oh, people did stare (because now, it was very visible). It was more uncomfortable when kids ask innocently “what happened to your eye”.

There was a time my daughter described me to her friends in school when someone bullied her; she said her mom is so tough and would put them all straight; mummy is so tough that her eye alone will scare you. When asked to explain, apparently she was referding to my droop. Whenever i had exgreme moods, the eye goes down competely and i guess it got scary.

 

By 2019, my brother and Pastor started having concerns about the eye; like he could imbibe my pain. He tried severally to convince me to get it checked out but i always maintained i was fine. Looking back, i think i was tired of disappointments and rejection. Later, his brother, a Doctor also started to get worried and they advised me to visit UCH. The mention of UCH worsened their case…lailai

My dad had a cataract removal done in 2020 with a renowned Doctor, so I used the opportunity to present myself to her. She was initially fascinated but upoj getting my history, for some reason, she decided against taking it up. In her words, she had devoted a lot into building a legacy for herself, she has no need for ‘heroic surgeries’ anymore. Her words rang clear, making me understand it was a complicated surgery, and would later inform my adamance and resolve to leave the eye be.

 

My dad departed this side of eternity in 2021 before he could get a chance to enjoy his brand new sight and while we mourned him, my vision impairment became more noticable. Both Doctor Saul and Pastor Adeyinka Adeleke got on my case again, to get the eye fixed especially since driving was becoming a hazard (hence i stopped driving long distances. My blind spot was poor).

A friend approached me about an alternative medicine. Apparently there was a man who could treat any eye problem with ease. She said patients got reffered to this man from UCH, especially if Doctors could not get to the root of the ailment. Her mother in law had been treated by this man, and she even got the mother in law to speak with me.

Off we went to see this baba, my husband and i! Consultation fee was 50 grand (when you are desperate, you become vulnerable). We paid.

Laslas sha, bàbà poured something worse than alligator pepper in my eye, directly under the eyelid and rubbed it hard together. Till date, its one of the worst pain i have ever experienced. I screamed, i wailed, he held the lid down. Whatever the stuff was, it was spicy and spikey. Baba sha gave verdict that kòkòrò Don chop onetin onetin for the eye and that the left eye was a gunner. But that he could sense that the kòkòrò was beginning to migrate to the right eye and that his mission would be to prevent the loss of sight in the right eye. He gave me one honey to lick twice daily like prescription. I must not use spoon, i must use my forefinger in a circular motion (like that also had something to do with the prescription). I adhered to everything to the letter, and i was hopeful…afterall i had a testimonial. Two weeks later, we returned for a follow up appointmnet…loro kan sha, till date, bàbà Don disappear 🤣.

 

The particular day i was there, he had no less than 20 clients. Multiply that by 50k consultation fee; that was a big cash out.

My work intensified again in 2022. I was advised to slow down but work just kept piling up, 24 hours wasn’t enough and most of it was spent on screen. My sight deteriorated and the lid closure went to about 90%. I was advised to slow down, i kept promising myself i would slow down next day…but tomorrow just never came.

And then I found myself in 2023 with even more work. And my vision deteriorated even more. 

 

Now, i could not see anything in my left eye without manually lifting the lid. When talking to people, i would unconsciously lift the lid with a finger all through conversation, and gently massage the lid (which had absolutely no effect).

Often time, i would think to myself that I would likely go blind by the age of 70. And the reason was simple. Id almost completely lost sight in one eye but my workload never slowed down but rather increased. Which means i was stressing the only valid eye by making it do the work of two eyes. I thought of it like an overused battery, the second one would burn out in half the time because of the workload.

And for this reason, i started go rush. If i would go blind by 70, let me be sure that i can boldly say that it was for a good cause that darkness came…let me be able to show something for it.

 

As dark as that sounds, i made peace with it without really considering it.

My husband practically drags me for an annual check up. I did not show up for the 2022 check up because he couldnt break free from work and i juat eouldnt go into some lab by myself. There was so much creativity seeking expression through me, and it constantly weighted on my brain and mind; i would rather spend time doing these things than voluntarily go for somethibg that directly benefits me (again, queer, but im being honest here).

So, 2023 he already knew the drill and took time kff work to come drag me down to the lab and ophta. The ophtamologist was alarmed and gave me a referral to UCH to see the same Doctor whom Pastoe Adeyinka had been trying to set me up with for a year.

 

This time, i made an attempt. I got to UCH but the procedure wàá killing. I was to return in a couple of dsys but my husband would have returned to work and i didn’t want to take chances with myself. We decixed to visit some privTe hospitals, inclusing one known for the best eye care in Ibadan.

We paid for vip registeration and all that. Only to see the Doctor and he teferred me still to UCH, the very same Doctor everyone else had been speaking of.

At that point, i was shocked. How come its only one person that could do this thing?

Humbled, I returned to UCH to complete the processing, and confessed to Pastor Yinka that I’d been to other places. The referral letters were sent to Prof for a prior assessment, and he probably got fascinated enough to agree to give me audience. I’m still in pains, so I don’t wanna brag about the attractiveness of my ptosis 🤣.

With the kind of reputation that proceeds him, I expected Professor Fasina to be quite cocky and dismissive. He is anything but! When he strolled in casually, greeting everyone including nurses and cleaners, in his stride, I was shocked.


Oh well, he was excited to see me (my ptosis is attractive se 🤣).

Something had changed for me at this point however…remember how the Doctor in the UK said I should wait until I had nothing to lose? Well, I’d reached that level of low. And at this point, it also ceased to be a cosmetic case but a surgery to improve my quality of life!


But the village people still no de rest! First surgery was scheduled for July…then resident Doctors went on strike. The second reschedule, Prof was out of town. I was going to chicken out, I told Pastor Yinka that maybe God was…he no even let me land before e rebuke the village people spirit 🤣. A third date got fixed, I got admitted, got prepped for surgery and was in the waiting room when I was calmly informed that UCH had electricity problem and that Prof wouldn’t want to risk having the surgery done under the management’s promise to put on the generator for four hours. He said it was a tricky procedure and since he was going in blind, he may encounter issues he didn’t prepare for.


Oh, I was disappointed; I felt like things just didn’t want to go my way, why had I dared to trust? To hope, that I would get a chance at a better quality of life.

As I laid o n the theatre table the following week, I wondered what exactly I pouted about the previous week. Why was I in a hurry to experience this level of pain. Oh I was humbled again! 😢


Seriously though, I was disappointed because there was an event pending (Ibadan Business Festival), and that was all I could think about. Even with me being fully on ground, there was still so much to ve done. Now, I was to have a surgery which I was enlightened just a few hours prior, that recovery might take up to 6 weeks (that left me like a week or two to fest. Now imagine knocking another week out).


Also, I had responsibilities. I have kids I’m responsible for, and an aged mother to take care of. A lot just kept whirling around my head and as such, I spared no time at all to properly process the surgery itself.


As i write this piece (7th November 2023), my phone screen appears cylindrical because i still have my left eye sewn together. And i can type these words because im familiar with the keyboard, not necessarily because I can see. My entire vision is blurred…which makes me wonder really, which organ exactly do we see with?

And our understanding of the various things we see how are we certain they are what we think they are?


What if for instance a ruler held in my hand is actually circular but because my mind has been conditioned to see it as long rectangular, I believe that is what it is?

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3 Comments

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    Posted 22/02/2019

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      Posted 22/02/2019

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        Posted 22/02/2019

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